Hayley’s story: Living life her way

At twenty-six, with two degrees under her belt and a job at Price Waterhouse Coopers, Hayley has achieved more than many her age. She’s also got a lot on her plate.

The effects of Spinal Muscular Atrophy (SMA) mean that Hayley is reliant on her support team daily to juggle her bourgeoning career, social commitments and medical appointments. It’s a full on schedule, and one that can change weekly.

Haley's Story
I look for staff that I can work with – ultimately, we’re in a working relationship. It’s about mutual respect.”

Hayley has been hiring her own support workers for 2 years, and has built a team around her that can cater to her busy lifestyle. Finding the right people has been a journey, and she’s learned lessons along the way about what works and what doesn’t.

Flexibility and reliability are crucial for Hayley as well as her carers, who are often working with multiple clients, and managing their own family commitments.

Like any working relationship, a good match is also about connection. As Hayley says, “Someone who listens and hears what I say. Someone who cares.”

Connecting with workers directly means that both Hayley and her support workers have real choice and control over how they work together – and can decide whether or not they are the right match.

We all just want to be in control of our own lives. Finding the right people for me is exactly what gives me the independence I need.

Our stories